Here is a little bit about my trip... More to come soon... I will be tweeting from Haiti and I hope to update my blog a lot while I am there.
Here is a news story that was done yesterday.
Mother traveling to find adopted son's family in Haiti: wane.com
Go and check it out...
Rebekah
3 comments:
How are you going to even begin? I would love to this for Alex but we hardly have any info to even go on. I hope it goes well for you and would love to hear how you are going to attempt this!!
So exciting! Yes, please update your blog a lot! I don't do twitter but want to hear all about your trip...and hopefully see the documentary when it's all done! :)
Hi Rebekah,
I stumbled upon your blog, and reading a few of the entries has given me a very meaningful inside perspective about having a child affected by spina bifida. I am inspired by your courage and touched by the pictures of your family that I had to reach out. My name is Courtney Beyer, and I am the new Study Coordinator at VitaPath Genetics. Earlier this year, we successfully completed the first phase of our landmark study looking at the genetic factors contributing to spina bifida. In conjunction with our academic collaborators at Children’s Hospital Oakland Research Institute (CHORI), Stanford, UC Berkeley and UCSF, we recruited over 1,000 women and their child affected by spina bifida to participate.
Our first phase produced promising results but, we believe that it is appropriate for us to replicate this study in a second, independent group of mothers. We are beginning our second study in early January and are reaching out to more mothers to participate. In order to reach as many women as possible, I would very much appreciate if you could include news about the study in your blog. I also have banners and buttons if you would like to post something on your site. In addition it would be great to connect with you via facebook (search SB Genetics) and twitter @sbgenetics.
I would like to get in contact with you to share more information and answer any questions that you may have. Please email me at CBeyer@vpgenetics.com and visit www.sbgenetics.org. This website gives an in depth explanation of the study as well as a link if you are interested in enrolling. Thank you for taking the time to read my note and I am greatly looking forward to being in contact.
Warmest regards and happy holidays,
Courtney
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